L’Association

THE DISEASE, « SCIENCES ET AVENIR »

THE DISEASE The lupus takes its name from one of its symptoms: skin rash on the face in form of mask called « wolf » (from the Latin lupus). Autoimmune, this chronic inflammatory disease is linked to dysfunction of immune defenses, which turn against the body. The damage can be limitated to scars (face, décolleté, hands) cause joint pains or reach …

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Systemic Lupus in Men

Systemic Lupus in Men : What feature?       Lupus is rare in men depending on series. There seems to have in men more kidney damage but this is controversial. There also seems to have more neurological manifestations, thrombotic manifestations, cardiovascular, serositis, arthritis, hepatomegaly, infections …. but this is very variable from one series to another.     Tan …

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Cardiovascular risk and systemic lupus erythematosus

Introduction and Epidemiology Atherosclerosis during lupus is an important issue because of its major impact in terms of morbi-mortality and prognosis. The last years are by the understanding of new pathophysiological mechanisms of atherosclerosis in connective which led to new therapeutic concepts. However, several questions remain unanswered about the particular mechanisms responsible for the accelerated …

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The first National Survey about prevalence of Lupus in France

The first National Survey about the prevalence of Lupus in France For the first time, a survey using national data of health (“SNIIRAM and PMSI) allowed to estimate the incidence and prevalence of systemic lupus erythematosus, in France, in respectively 3,32 and 47 case/100 000 year 2010, and 27369 prevalent cases the same year. The …

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We want (have the right) to work !

Chronic diseases and professional life Many people with a chronic disease work or want to work. However, people affected by these diseases are still too often outside of any professional activity, either because they are unfamiliar with the integration structures and devices maintaining employment, either because operators insertion and employers don’t have at their disposal …

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Recommendations of Oral Health for patients with Scleroderma Systemic

Juliette ROCHEFORT1, Yvon Roche1, Adrian Hij2, D. Farge2, Arnaud Rigolet3   Unit of dentistry, Rothschild Hospital, Paris, France Unit of Internal Médicine and Vascular Pathology, St Louis Hospital, Paris, France Unit of Stomatology and Maxillofacial, St Louis Hospital, Paris, France The Scleroderma Systemic(SSc) is a disease of connective tissue. Initiated by an endothelial injury, it’s characterized …

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Renal Involvement in Systemic Lupus Erythematosus

Introduction The kidneys filter the blood and remove the waste product in the urine. Small kidney filters, called « glomeruli », let through water, salt and waste, but don’t let the albumin and blood cells. In the systemic lupus erythematosus, glomeruli can be damaged by the deposit of antibodies and by an inflammatory of up destruction. It let go …

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A Year of Therapeutic Education at National Center of Systemic Lupus

This year again has been eventful!! Indeed we first have sustained the Therapeutic Education Program always offering 6 learning sessions per month. Moreover, thanks to the availability of caregivers of the team of TEP we have established    « Education Saturdays ». In one day, we animate the 6 sessions of the program, in parallel 2 by 2, which …

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