They appear transiently or permanently and seem independent from each other : Non-specific symptoms of lupus : *Fatigue, *Fever, *Weight changes, *Swollen glands. Specific symptoms of lupus : *Erythema in the shape of butterfly wings on the face, *Mucosal ulcers especially buccal, *Photosensitivity : abnormal facility of occurrence of sunburn, *Arthritis (joint inflammation), *Pleurisy, *Pericarditis, *Kidney (appearance of protein …
Other autoimmunes diseases “A.I.D” are also pathologies which occur after an disturbance of the immune system or due to external elements amenantson dysfunction. There are many, some exclusively affects an organ (thyroid gland, for example) or other so-called systemic affecting simultaneously several organs. These diseases are very different from each other in their clinical expression, but …
The exact cause is not yet known, but it appears that some genetic predisposition may play a role in the onset of the disease. Lupus would develop , due to some factors: environmental, complement deficiencies, previously known elements: *Hormonal contraception, *Sun, *Stress, *A medication, *A pregnancy, *Infection, *Operations…..
Making gains against lupus kidney disease Brian Kaplan was a 14-year-old high school freshman when he was diagnosed with lupus kidney disease. His aunt had died from lupus years before, so the diagnosis felt decidedly grave. Kaplan was prescribed a course of cyclophosphamide, a chemotherapy drug developed for treating various types of cancer that is used …
Lupus is referred to in lots of ways. It’s “a woman’s disease”. It’s “a family disease”. These references, although somewhat true, point to one important factor about lupus. The disease seems to have a hereditary component. With more questions than answers, medical experts are betting on genetics to help with diagnosis and treatment. “I believe that …
How research into the heredity of lupus has evolved Lire la suite »
My name is Adeline and i’m 34 years old. I want to share with you , my emotions, my hopes, my daily life since i have a Systemic Lupus Erythematosus. Many people are asking themselves : oh well, I’ve never heard of this disease! In latin, Lupus translate into the Wolf. Indeed, too few people know, personnaly, i have the …
The term Lupus means “wolf” in Latin (in German “wolf”). In consulting medical writing of the ancients is noted that this term used to characterize various affection of skin that the lesion are reminiscent of wolf bite. It appears for the first time in medical literature in 916 AD about the illness of the Bishop of Liege, Eraclius, Lupus, which he …
Le programme d’Education Thérapeutique se pérennise en offrant toujours 6 séances d’apprentissage par mois. De plus, “les Samedis d’Education” ont été instaurés, en une journée les équipes animent les 6 séances du programme, en parallèle 2 par 2, ce qui permet aux patients d’assister au plus à trois séances dans la même journée. Outre l’avantage …
Une année d’Education Thérapeutique au Centre de Référence du Lupus Lire la suite »
L’Education Thérapeutique L’Education Thérapeutique du Patient (ETP), selon l’Organisation Mondiale de la Santé, vise à aider les patients à acquérir des compétences spécifiques, dans le but notamment d’améliorer leur qualité de vie. Elle trouve tout son sens dans les maladies chroniques, où l’on considère qu’elle est un processus continu et intégré aux soins. Il s’agit …
L’Education Thérapeutique du Patient (ETP)en partenariat avec le Centre National de Référence du Lupus, à savoir l’Hôpital de la Pitié Salpêtrière à Paris, est un projet pilote national, agréé par le ministère de la Santé, il vise à aider les patients à gérer au mieux leur vie avec une maladie chronique. Elle est un processus …
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